23 & Me recently declared bankruptcy as described in many news articles, including this article from Reuters.
Many voices within the genealogy community have weighed in on this matter, mostly advocating a wait-and-see approach, please see the posts below. However, all JGSLI members should at a minimum download a copy of their data from the company.
From the founders of the Holocaust Reunion Project: Jennifer Mendelsohn shared this article from Reason magazine and Adina Newman shared this post on LinkedIn
Kitty Munson Cooper wrote this a blog post titled "23andme: Don't Panic"
Roberta Estes has a longer post on her blog, DNAeXplained
If you wish to download or remove your information from 23andMe please see the information below.
How to download your genetic data:
Regardless of what you choose, experts recommend downloading your raw DNA data—especially if you plan to ask the company to delete it. Users of 23andMe can transfer their data to another platform or preserve for personal storage by following these steps:
- Log into your 23andMe account on the website
- Go to https://you.23andme.com/user/
- Scroll to the “23andMe Data” section at the bottom of the page
- Download your data
Southard has a tutorial for downloading raw 23andMe data on her website.
How to delete genetic data/test kit:
- Log into your 23andMe account on the website
- Go to https://you.23andme.com/user/
- Scroll to the “23andMe Data” section at the bottom of the page
- Scroll to “Delete Data”
- Click “Permanently Delete Data”
- Don’t forget: Confirm your request—you will receive an email from 23andMe and must follow the link in the email to confirm your request
How to destroy your 23andMe test sample:
Deleting your physical DNA sample is different from deleting the genetic data in 23andMe’s database if you previously opted to have your saliva sample and DNA stored by 23andMe. To change that preference, you can do that from your account settings page under “Preferences.”
How to revoke permission for your genetic data to be used in research:
If you previously consented to 23andMe and third-party researchers to use your genetic data in research, you can revoke your consent in your account settings under “Research and Product Consents.”
Note that this will only prevent your data from being used in future research. Your data (which has been anonymized—that is, disassociated with your name and other identifying information) will remain in any research studies that have already taken place.